Helpful resources to support your practice

Impact of SBS Brochure

Quick overview of what SBS is, whom it affects, and the implications the condition can have on your patients.

Quick Guide to SBS

Use these key terms and phrases to assist you in navigating your patient’s condition.

Conference Schedule

Learn more about SBS and the patient experience at the following conferences:

Foundations and advocacy groups

Be a part of the conversation.

The organizations and communities below can help you and your patients navigate living with SBS.

Crohn's & Colitis Foundation logo

Crohn's & Colitis Foundation

The Crohn's & Colitis Foundation is a nonprofit, volunteer-fueled organization dedicated to finding cures to Crohn's disease and ulcerative colitis, and improving the quality of life of children and adults affected by these diseases.

Visit Crohn's & Colitis Foundation

IFFGD logo

IFFGD

IFFGD, the International Foundation for Gastrointestinal Disorders, is a public charity. IFFGD is a registered nonprofit education and research organization.

Visit IFFGD

NORD logo

NORD

National Organization of Rare Disorders is a full-service, mission-driven nonprofit reimagining a future where every person with a rare disease, and their families, live their best lives.

Visit NORD

Oley logo

Oley

The Oley Foundation is a nonprofit home nutrition therapy community and advocacy group whose goal is to enrich the lives of those living with home IV nutrition or tube feeding through advocacy, education, community, and innovation.

Visit Oley

Transplant Unwrapped logo

Transplant Unwrapped

Transplant Unwrapped is a nonprofit organization with the mission to ensure every patient, caregiver, and member of the intestinal disease community feels well-educated and supported throughout their journey with intestinal failure, intestinal rehabilitation, and intestinal and multivisceral transplantation. 

Visit Transplant Unwrapped

UOAA logo

UOAA

United Ostomy Associations of America, Inc (UOAA) promotes quality of life for people with ostomies and continent diversions through information, support, advocacy, and collaboration. UOAA is nonprofit organization that supports, empowers, and advocates for people who have had or who will have ostomy or continent diversion surgery.

Visit UOAA
IV=intravenous; SBS=short bowel syndrome.
REFERENCE

1. Data on file. Qualitative interviews of patients with short bowel syndrome and healthcare providers identifying the unmet needs in SBS-IF.